tag:blogger.com,1999:blog-3569556670499937913.post1189575894115318265..comments2020-04-05T16:55:08.658+01:00Comments on Battling with CRPS: You cannot be serious!!!Janehttp://www.blogger.com/profile/16628860673095348176noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3569556670499937913.post-69794454731383113682013-09-15T02:44:17.722+01:002013-09-15T02:44:17.722+01:00Definitely never keep a limb with RSD still! I had...Definitely never keep a limb with RSD still! I had a big improvement of symptoms when my local orthopedist forced me to keep moving following my last hip surgery, which had forced the RSD from 1 leg to both and from moderate to severe in the original site (right leg, waist to toes). We were extremely cautious in *how* I moved, but we made sure I moved. I went for warm water physical therapy at the local rehab hospital. They keep their pool heated to 90 F and the air is in the 80's in that room so that patients never get cold. They would use a lift to raise and lower me into the water in the beginning, then after 5 months of therapy, my therapist taught me how to use the rail to get myself up the stairs. I did a total of 7 months of therapy and it was worth it. We got the allydonia back under enough control that I could wear my pre-op pants again (still no denim or rough fabrics, but more than just fleece). I find that whenever the allydonia gets really bad, being in heated water frequently helps immensely to get it back under control. <br /><br />I hope you guys find a good treatment plan that can help all 3 of your affected limbs. Cassiehttps://www.blogger.com/profile/06143599941651150754noreply@blogger.comtag:blogger.com,1999:blog-3569556670499937913.post-21949532586223268672013-07-03T19:28:38.216+01:002013-07-03T19:28:38.216+01:00I am so sorry you are facing this latest setback, ...I am so sorry you are facing this latest setback, one step forward and two back is how it often seems with these progressive conditions that no one truly understands. The medical profession have their own way of doing things and won't deviate from that even of it seems sensible and time saving to do so, it's the system and we can't beat the system in all Its stupidity. You know your own body the best, you know your condition the best, you are living with it each day so trust your own judgement on this. XxAnonymoushttps://www.blogger.com/profile/08105838620909892076noreply@blogger.com